24.04.2007

Short clip of muscle spasms in my face, cant open my eyes and mouth puckers. It is painful! Lately the 'spasm' moves all over my face and into my neck. Which causes my neck to turn to the side at a incrredible angle and it feels like my neck is tying to "twist off".

Christian Hoff, Tony Award Winner from Jersey Boys, teams up with The Bachmann-Strauss Foundation to speak out about a movement disorder known as Dystonia. Dystonia is a neurological muscle disorder that causes uncontrollable, painful spasms in one or more parts of the body and is not widely known. Dystonia affects more than 500,000 people in North America which is more than muscular dystrophy, Huntington's disease and Lou Gehrig's disease combined. Innovative research is currently being conducted to lessen the painful effects of Dystonia, but more needs to be done. Getting more answers about Dystonia can possibly help uncover more about other movement disorders such Parkinson's Disease. To learn more about Dystonia and how you can help go to http://www.dystonia-parkinsons.org/

Examples of facial spasms from man with Blepharospasm, Meige Syndrome, Dystonia

Approximately 125,000 Americans suffer from dystonia. The condition is a result of the brain firing abnormally, sending impulses of electricity to muscles that causes them to contract constantly. The treatment Veronica's doctor, UCLA neurosurgeon Dr. Antonio DeSalles, recommended was to surgically implant a pacemaker device to stop the impulses and block the transmission of electricity to the muscles. The procedure involves first implanting the electrodes and threading the wires into the patient's brain. A second operation connects the electrodes to a compact generator. The pacemaker is then programmed to battle the brain. More at http://www.uclahealth.org/body.cfm?id=930

A movement disorder which affects speech, swallowing, chewing due to involuntarily jaw and tongue movements. Closely related to Parkinsons Disease, it can be caused by prescription of neuroleptic drugs.

Dystonia Awareness Video Presented on behalf of the Myspace Dystonia Support Group http://groups.myspace.com/dystonia. If You or someone You know and love have Dystonia there is a New Dystonia Educational Forum on WEGO Health that is moderated by Beka of Care4Dystonia that I highly recommend http://community.wegohealth.com/group/dystonia

Cervical Dystonia and Botox

If You or someone You know and love have Dystonia there is a New Dystonia Educational Forum on WEGO Health that is moderated by Beka of Care4Dystonia that I highly recommend http://community.wegohealth.com/group/dystonia

After too many extensive hrs. practicing the addictive art of drumming, I now have an on-set movement disorder called Focal Dystonia(www.orangedrum.com/dystoniapage.html). Murry Gussek's classic is played off my left with reversed traditional in attempts to get back on track.

Interviews with children with dystonia and their parents.

Dr. Jonathan Mink discusses how research can have an impact on treatments for patients with dystonia, and the role that the Dystonia Medical Research Foundation plays in advancing research. For more information on dystonia, please visit www.dystonia-foundation.org

Today there are over 40 million people in North America suffering from a movement disorder. One of them is the 3rd most common: DYSTONIA. Dystonia is a neurological disorder causing abnormal, involuntary postures, movements, and tremors; it remains cureless as well as disabling for many of its victims. Related Links: Beka's Personal Journey http://care4dystonia.org/index.php/moving-series/ About DBS Surgery http://www.parasphotography.com/beka.html About Botulinum Toxin http://www.myobloc.com More Toxin Information http://care4dystonia.org/index.php/nt201-toxin/ Meds to Avoid http://care4dystonia.org/index.php/our-publications/ You can make a change by donating to Care4Dystonia! http://care4dystonia.org/index.php/donate/ Our web assistance has been provided by Virtual Magpie Design (www.virtualmagpie.com).

Harrison and Gracie Colegrove on GMA 2002.

Dystonia Medical Research Foundation Awareness Video

This is 9 minute and 27 second video of what Jason has to live with every moment of his life. A disease called Dystonia that currently has no cure. If you can help in any way by making National awareness or contributions PLEASE do! http://www.dystonia-foundation.org

This is the 20/20 interview that features Ed Cwalinski's remarkable surgery called dbs that helped him with dystonia

This is a edited version of the other video. Botox in this video is used only for a neurological disorder blepharospasm Physcian is Dr Mottsimoto of Mayo Clinic. Dystonia has no cure and is life long as of this time.

Ez pdig a műtét után van. Az előző után jó nézni, igaz?

I was brain/body damaged repeatedly in 2003 from prescribed medications. I had severe withdrawls for months, I had been on 1 since prior 1993 Imovane at high doses. I have CFIDS and FM and was repeatedly misdiagnised and over medicated. I went through severe withdrawls for many months, with seizures and myoclonic convulsions everyday until I paralize if they were not brought under control fast enough. As seizure medications were involved in the brain damage, lamictal, valproic acid, tegrotel, as well as other medications, they could not give these to me again, they caused too much pressure on my brain and my muscles and ligaments would stiffen and shorten drastically again. My brain, body damage was not put on my medical records until possibly some of it in 2005, I am not sure how much or what, my left side of body is weak and drags around on and off, this happened while coming off the drugs and my speech was affected for a 2nd time the first after the lamictal. It still flucates drastically. After positive light test for seizures disappeared from medical records, and this was just after being released from hosptial they refused to stablize them and left like this for month after month, still have them, and muscle ligament damage has worsend,, did drastically much more after this very quickly, it varies depending if on anything to relax them, dyskenisa has spread throughout my body face, hands, feet, neck, drug induced parkinsons, myocolinic convulsions I wake up to every day as well, sometimes I can not hold my head up. I can not lift very much or walk far in home, use wheelchair sometimes, not wheelchair accessable, looking at this I wondering what I am on that my walking looks so good and fluid not stiff as a board, maybe the saline pumped up with and the meds at the time, think mention them

I was brain/body damaged repeatedly in 2003 from prescribed medications. I had severe withdrawls for months, I had been on 1 since prior 1993 Imovane at high doses. I have CFIDS and FM and was repeatedly misdiagnised and over medicated. I went through severe withdrawls for many months, with seizures and myoclonic convulsions everyday until I paralize if they were not brought under control fast enough. As seizure medications were involved in the brain damage, lamictal, valproic acid, tegrotel, as well as other medications, they could not give these to me again, they caused too much pressure on my brain and my muscles and ligaments would stiffen and shorten drastically again. After positive light test for seizures disappeared from medical records, and this was just after being released from hosptial they refused to stablize them and left like this for month after month, still have them, and muscle ligament damage has worsend,, did drastically much more after this very quickly, it varies depending if on anything to relax them, dyskenisa has spread throughout my body face, hands, feet, neck, drug induced parkinsons, myocolinic convulsions I wake up to every day as well, sometimes I can not hold my head up. I can not lift very much or walk far in home, use wheelchair sometimes, not wheelchair accessable, looking at this I wondering what I am on that my walking looks so good and fluid not stiff as a board, maybe the saline pumped up with and the meds at the time, think mention them

x-linked dystonia-parkinsonism

Another example of recovery from this wicked movement disorder, the jerk-like movements disappear after treatment allowing the guitarist to play as usual. Un neurólogo le diagnostica distonía focal y sin más le sugiere botox, el guitarrista accede puesto que no tiene otras referencias, a partir de ese momento y según palabras textuales atraviesa la experiencia más horrible que pudiera haberse imaginado por la sensación de "dedo muerto", decide suspender el tratamiento con botox ya que empeora y tiene que esperar varios meses hasta recuperar la sensibilidad que tenía antes del tratamiento con botox, decide una segunda visita a una clínica especializada en tratar su problema de nuevo diagnosticado como tal y tras el tratamiento sigue empeorando y lo deja. El guitarrista confiesa que antes de acudir a mi estudio las contracciones involuntarias eran incluso peores de lo que se muestra en la primera sesion de terapia puesto que la mano llegaba a experimentar ligeras parálisis o bloqueos de movimiento.

I ask the trumpetist to play a note on the mouthpiece using the tongue, it occurs a movement of the muscles backwards previous to the flow of air, then I ask the trumpetist to blow inside the mouthpiece without using the tongue and the physiological response varies greatly. We also do the same at the trumpet and the same happens. The consequences don't need any comment, they hinder his general playing to a great point, and afterwards we may see how the involuntary movement diminishes until its disappearance. Cuando le pido al trompetista que emita el sonido en la boquilla se observa como el músculo risorio se activa previamente al flujo del aire, posteriormente le pido que haga lo mismo pero sin hacer uso de la lengua, simplemente soplando, la respuesta fisiológica se normaliza. Cuando se hace el mismo experimento con la trompeta ocurre lo mismo. Si estudiamos con cuidado las imágenes podemos apreciar toda una serie de consecuencias que se derivan del movimiento involuntario y que van a perjudicar seriamente al trompetista cuando practique. Unos meses después podemos ver como el movimiento involuntario disminuye su intensidad hasta que prácticamente desaparece.

This is similar to my story.